| Posted on 25/04/2014 - 06:58|
The creation of a web tool for people living with dementia and their carers to improve wellbeing by supporting these people to engage in a range of activities (social, creative, spiritual, intellectual, physical) according to each person’s needs
Over 6.8 million people live with dementia in the EU, around two thirds at home. Yet family carers report a lack of real-time, practical advice. Caring for people with dementia is stressful, and depression occurs in around 40% of carers. Government programmes are underfunded and overwhelmed, with inconsistent approaches, and people living with dementia and their carers are experience increasing social isolation with increasing needs. Underlying all of this is a lack of understanding of dementia by the general public, many of who believe nothing can be done to improve the quality of life of a person with dementia. But evidence shows that people with dementia and their carers can have wellbeing, if supported. Non-trivial Pursuits seeks to facilitate some important elements of the support
Non-trivial Pursuits is a software tool that will support people living with dementia and their carers, through;
• Generating ideas and step-by-step guidance for participation in activities that are meaningful and achievable, taking into account personality, interests, life history, and physical and cognitive health
This grant will fund user-centred prototyping of the website’s functionality and content. It will be piloted with people living with dementia and their carers to validate the concept
Target group and social impact
Target users of Non-Trivial Pursuits are people living with dementia in the community and their carers. The software tool will improve the ability of people to find solutions to dementia care challenges in real time, and increase both the quantity and quality of engaging in stimulating, meaningful activities. This will enhance the wellbeing of the person with dementia and their carer, reduce isolation, and therefore support the person living with dementia to live and be cared for at home for longer. There are currently 1.4 million people providing unpaid care for more than 50 hours per week, saving the UK over £8 billion per year. Non-Trivial Pursuits could potentially support and further this economic impact, while helping to ensure the quality of life of those home carers remains high.
Competences of the applicant
City University London, through its computing and health academics, has world-class expertise in the development of digital technologies to support people with dementia and their carers. Its EU-funded Mirror project (2010-14) developed a suite of mobile apps demonstrated to improve aspects of residential care, and results were published in the cover research article of Communications ACM Nov 13.
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